NTM Info & Research recognizes the continuing increase of cases and the need for information and resources for those affected by this disease.
With World NTM Awareness Day, we aim to raise awareness on the resources available to patients and increase early testing to avoid delayed diagnosis.
Vision
NTMir serves patients as well as the healthcare providers and researchers concerned with NTM. As a national organization, we can advance a broad agenda more successfully than individuals or institutions alone. Our voice is that of the patients, providers and researchers who comprise our collective constituency.
NTMir and its website were originally started by Fern Leitman, an NTM patient, and her husband Philip.
Mission
Our mission is to help patients living with nontuberculous mycobacterial (NTM) disease and other related comorbid illnesses by advocating for better education, early detection, and more research. By working with patients, developing a network of support groups, engaging our constituencies to increase awareness of the disease, providing education opportunities about the disease, and demonstrating leadership at all levels to meet our goals, we strive to accelerate the development of new treatments that will help patients.
About
World NTM Awareness Day
World NTM Awareness Day aims to raise awareness on the resources available to patients and increase early testing to avoid delayed diagnosis. A global partnership was created between patient advocates, representatives from collaborating advocacy organizations and professional societies, and leading experts.
History of 20 Years
Phillip Leitman and his wife Fern founded NTMinfo in 2003. Philip Leitman likes to tell people that the most important job he ever had was caring for his late wife, Fern, who was ill for nearly two decades with a resistant Mycobacterium Abscessus pulmonary infection. His passion is helping NTM patients individually and through NTM Info & Research (NTMir), an organization he and his late wife co-founded in 2003.
Today, Phillip’s daughter Amy is the president of NTMinfo, a role she’s held for three years. She’s as passionate as Phillip is about helping NTM patients live their best lives, helping provide information about treatment innovations, research and support groups. Check out their journey on our timeline.
Leadership
CO-FOUNDER AND BOARD MEMBER
PHILIP LEITMAN
Philip Leitman likes to tell people that the most important job he ever had was caring for his late wife, Fern, who was ill for
PRESIDENT
AMY LEITMAN, JD
Amy Leitman is the President of NTM Info & Research, a nonprofit advocacy group for patients with pulmonary
BOARD CHAIR
BRANDON MITCHELL
Brandon Mitchell is the Vice President of Company Partnerships at Venture For America, a non-profit Fellowship
There are many species of NTM. Mycobacterium avium complex (MAC) is the most common, accounting for 80% of all NTM lung disease cases in the US.
Partner Organizations
News for Patients
How to Live Life to the Fullest with NTM and Other Chronic Lung Disease:
“Insight” pamphlet:
Mental Health:
Dietary Supplements and Nutrition:
News for Providers
Bronchiectasis and Nontuberculous Mycobacterial Disease:
Clinical Trials:
Pharmacotherapy for Non-Cystic Fibrosis Bronchiectasis:
Fight Back with Food:
Supporters
Platinum
Bronze
Friends
