August 4th

World NTM Awareness Day

NTM Info & Research recognizes the continuing increase of cases and the need for information and resources for those affected by this disease.

With World NTM Awareness Day, we aim to raise awareness on the resources available to patients and increase early testing to avoid delayed diagnosis.

More Than 20 Years of Helping Patients

Phillip Leitman and his wife Fern founded NTM Info & Research in 2003. Philip Leitman likes to tell people that the most important job he ever had was caring for his late wife, Fern, who was ill for nearly two decades with a resistant Mycobacterium Abscessus pulmonary infection. His passion is helping NTM patients individually and through NTM Info & Research (NTMir), an organization he and his late wife co-founded in 2003.

Today, Phillip’s daughter Amy is the president of NTM Info & Research, a role she’s held for three years. She’s as passionate as Phillip is about helping NTM patients live their best lives, helping provide information about treatment innovations, research and support groups. Check out their journey on our timeline

Mission

Our mission is to help patients living with nontuberculous mycobacterial (NTM) disease and other related comorbid illnesses by advocating for better education, early detection, and more research. By working with patients, developing a network of support groups, engaging our constituencies to increase awareness of the disease, providing education opportunities about the disease, and demonstrating leadership at all levels to meet our goals, we strive to accelerate the development of new treatments that will help patients.

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Vision

NTMir serves patients as well as the healthcare providers and researchers concerned with NTM. As a national organization, we can advance a broad agenda more successfully than individuals or institutions alone. Our voice is that of the patients, providers and researchers who comprise our collective constituency.

NTMir and its website were originally started by Fern Leitman, an NTM patient, and her husband Philip.

220,000

ESTIMATED CASES
OF NTM IN THE US
IN 2020

8.2 %

THE RISE IN THE
NUMBER OF NTM CASES
EACH YEAR

2.8m

ANTIBIOTIC-
RESISTANT INFECTIONS
IN THE US EACH YEAR

Webinars

4 Aug
04:00 PM ET

NTM & Nutrition

Speaker:
Michelle MacDonald
MS, RDN, CDCES

8 Aug
02:00 PM ET

NTM 101: The Basics of Mycobacteria

Speaker:
Chuck Daley
MD

22 Aug
01:00-02:00 PM ET

Extrapulmonary NTM

Speaker:
Elisa Ignatius
MD

What does NTMir mean to you?

About World NTM Awareness Day

World NTM Awareness Day aims to raise awareness on the resources available to patients and increase early testing to avoid delayed diagnosis. A global partnership was created between patient advocates, representatives from collaborating advocacy organizations and professional societies, and leading experts.

Leadership

CO-FOUNDER AND BOARD MEMBER

PHILIP LEITMAN

Philip Leitman likes to tell people that the most important job he ever had was caring for his late wife, Fern, who was ill for…

PRESIDENT

AMY LEITMAN, JD

Amy Leitman is the President of NTM Info & Research, a nonprofit advocacy group for patients with pulmonary

BOARD CHAIR

BRANDON MITCHELL

Brandon Mitchell is the Vice President of Company Partnerships at Venture For America, a non-profit Fellowship…

Partner Organizations

There are many species of NTM. Mycobacterium avium complex (MAC) is the most common, accounting for 80% of all NTM lung disease cases in the US.

Resources for Patients

You're Not Alone!

“Insight” Patient Pamphlet

Educational Videos

Online Community Connect

Resources for Providers

Practice Guidelines

Clinical Trials

Bronchiectasis and NTM Care Center Network

Pharmacotherapy for Non-Cystic Fibrosis Bronchiectasis

Bronchiectasis and Nontuberculous Mycobacterial Disease

Our Story

NTM connect

World NTM Shop

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Supporters

We are grateful to the following supporters of World NTM Awareness Day:

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