August 4th
World NTM Awareness Day
NTM Info & Research recognizes the continuing increase of cases and the need for information and resources for those affected by this disease.
With World NTM Awareness Day, we aim to raise awareness on the resources available to patients and increase early testing to avoid delayed diagnosis.
More Than 20 Years of Helping Patients
Phillip Leitman and his wife Fern founded NTM Info & Research in 2003. Philip Leitman likes to tell people that the most important job he ever had was caring for his late wife, Fern, who was ill for nearly two decades with a resistant Mycobacterium Abscessus pulmonary infection. His passion is helping NTM patients individually and through NTM Info & Research (NTMir), an organization he and his late wife co-founded in 2003.
Today, Phillip’s daughter Amy is the president of NTM Info & Research, a role she’s held for three years. She’s as passionate as Phillip is about helping NTM patients live their best lives, helping provide information about treatment innovations, research and support groups. Check out their journey on our timeline
Mission
Our mission is to help patients living with nontuberculous mycobacterial (NTM) disease and other related comorbid illnesses by advocating for better education, early detection, and more research. By working with patients, developing a network of support groups, engaging our constituencies to increase awareness of the disease, providing education opportunities about the disease, and demonstrating leadership at all levels to meet our goals, we strive to accelerate the development of new treatments that will help patients.
Vision
NTMir serves patients as well as the healthcare providers and researchers concerned with NTM. As a national organization, we can advance a broad agenda more successfully than individuals or institutions alone. Our voice is that of the patients, providers and researchers who comprise our collective constituency.
NTMir and its website were originally started by Fern Leitman, an NTM patient, and her husband Philip.
220,000
ESTIMATED CASES
OF NTM IN THE US
IN 2020
8.2 %
THE RISE IN THE
NUMBER OF NTM CASES
EACH YEAR
2.8m
ANTIBIOTIC-
RESISTANT INFECTIONS
IN THE US EACH YEAR
Webinars
NTM & Nutrition
Speaker:
Michelle MacDonald
MS, RDN, CDCES
NTM 101: The Basics of Mycobacteria
Speaker:
Chuck Daley
MD
Extrapulmonary NTM
Speaker:
Elisa Ignatius
MD
About World NTM Awareness Day
World NTM Awareness Day aims to raise awareness on the resources available to patients and increase early testing to avoid delayed diagnosis. A global partnership was created between patient advocates, representatives from collaborating advocacy organizations and professional societies, and leading experts.
Leadership
CO-FOUNDER AND BOARD MEMBER
PHILIP LEITMAN
PRESIDENT
AMY LEITMAN, JD
BOARD CHAIR
BRANDON MITCHELL
Philip moved to Miami, Florida from Canada in 1990, where had been the CEO of his own company. In addition, Philip has served as a Vice Chair of the Council of National Trustees of National Jewish Medical and Research Center, as a Board Member of the American Lung Association of Southeast Florida, and a Board Member of SeniorCare Meals on Wheels.
Philip and his wife Nancy, their children and grandchildren live in Miami, Florida.
Amy Leitman is the President of NTM Info & Research, a nonprofit advocacy group for patients with pulmonary nontuberculous mycobacterial disease. The daughter of a patient with NTM lung disease, she has spent the last decade championing the voice of the patient.
In her role, Amy represents the interests and perspectives of patients, healthcare providers, researchers, industry, and other interested stakeholders, serves as a liaison to legislators, regulators, and independent organizations seeking patient input, and speaks at multi-stakeholder meetings. She has presented original patient preference research and is a co-author of several papers on NTM lung disease. As NTMir’s representative to the NTM Research Consortium, Amy has collaborated on patient-centered and epidemiologic research.
Prior to joining NTM Info & Research, Amy spent many years working in communications and marketing, including for an NBA team where she oversaw the revision and relaunch of their website as well as the development of gameday collateral materials, and a major community nonprofit organization that mobilized human and financial resources to strengthen local and international community social safety nets.
Amy is a member of the American Thoracic Society, the Infectious Diseases Society of America, the American College of Chest Physicians (CHEST), the American Society for Microbiology, the European Respiratory Society, and the Drug Information Association.
A native of Montreal, Canada, Amy grew up in Toronto before moving to Miami, Florida where she earned her Bachelor of Arts and Juris Doctor from the University of Miami.
Brandon was previously the Vice President of Company Partnerships at Venture For America (VFA), a nonprofit Fellowship program that gives recent college graduates firsthand startup experiences that help them become leaders who make meaningful impacts on their careers. While at VFA, Brandon oversaw the launch of “Connect”, an online platform that brings together Fellows, Startup Founders, Investors, and Ecosystem Builders across the country to network, accelerate careers, and create a more inclusive future of entrepreneurship. He also served as VFA’s Director of Miami leading the market to some of its highest fundraising and partnership numbers in its history.
Before joining VFA, Brandon worked on the Alumni Relations team at the University of Miami, designing and implementing a robust young alumni engagement program and overseeing the creation and launch of the university’s “Senior Sendoff” and “30 Under 30” programs that together led the university to its highest student and young alumni engagement levels ever.
Brandon is a two-time graduate of the University of Miami and is deeply passionate about the Greater Miami community. He serves on the Board of Directors of the Greater Miami Chamber of Commerce as the Chair of Leadership Miami, the Board of Directors of Iron Arrow Honor Society at the University of Miami, and the Chair of the Board for NTM Info & Research, a Miami-based non-profit organization formed on behalf of patients with non-tuberculous mycobacterial (NTM) disease for patient support, education and research. He remains an active supporter of United Way of Miami, Mosaic Miami, and has been recognized as a Top-20 Professional Under 40 by Brickell Magazine in Miami, FL.
Partner Organizations
There are many species of NTM. Mycobacterium avium complex (MAC) is the most common, accounting for 80% of all NTM lung disease cases in the US.
Resources for Patients
You're Not Alone!
“Insight” Patient Pamphlet
Educational Videos
Online Community Connect
Resources for Providers
Practice Guidelines
Clinical Trials
Bronchiectasis and NTM Care Center Network
Pharmacotherapy for Non-Cystic Fibrosis Bronchiectasis
Bronchiectasis and Nontuberculous Mycobacterial Disease
Our Story
Supporters
We are grateful to the following supporters of World NTM Awareness Day:
Take action now
Your support can make the big changes
Visit Our Shop
Your Story Matters - Tote Bag
$16.99
NTM Spread the word Spread Hope - Women's Premium T-Shirt
$26.99
Strength in Every Breath NTM & BE - Men's Premium Long Sleeve T-Shirt
$29.49
World NTM Awareness Day - Dog Bandana
$16.9
Fight NTM - Contrast Coffee Mug
$17.49
Sign me up for updates!
and all updates related to NTM!
Get in touch
Connect with us through our
social media channels.